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Joined 1 year ago
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Cake day: July 3rd, 2023

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  • Yeah it has, I just ended my therapy after about 2 years of in person weekly sessions. Combined with antidepressants at my lowest it formed an important part of me overcoming my depression. I had a lot of guilt about inflicting my depression on those around me so having an outlet for my thoughts and feelings that wasn’t connected to the rest of my life was very valuable.

    Its made me more resilient in terms of handling my anxieties - I can now deal with thoughts and situations that would have spiralled me into a deep depression before and can recognise and derail oncoming panic attacks before they happen.

    It also made me realise how I was feeling guilty when perceived people close to me to be suffering emotionally (both real but often imagined) out of a desire to fix everything, even when they didn’t ask or need me too, which was very unhealthy for me. Learning to stop that has decreased my stress significantly.

    I recognise that some people really don’t find therapy helpful, but I’d definitely recommend trying it with a few different therapists first before giving up. So much of it is down to your individual rapport with your therapist. There’s also other options like group therapy, which I’ve also found helpful for coming to realizations about myself but less good for working through my issues.




  • Our friend had a similar story to yours, they were told they were making it up despite the fact they were starting to die anytime they went out in the sun, it took multiple near death experiences for them to get diagnosed as a child. I’ve never run into anyone else with it in the UK but there is a community of expats with it in Rotterdam the Netherlands as they have one of the best Porphyria treatment and research centers in the world. Our friend emigration their a while ago for it and has been using the new implant that’s been developed and they’ve said it’s completely life changing - it doubles their exposure time and allows them to live a much more normal life. If you’d like to make contact with other people with it, feel free to DM me your email and I can pass it along.